I’ve wanted to write about this for a long time. But here’s the thing—being vulnerable online sucks. I mean, really sucks. If you’ve ever put yourself out there, even a little bit, you know what I mean. The internet can be a beautiful place, a community, a space where people rally around each other. But […]
Alright, let’s get real. If you have a child with special needs—like my amazing daughter with Pitt Hopkins Syndrome—you know that planning for the future is a whole different ball game. We’re not just thinking about saving for college; we’re talking about lifelong care, medical expenses, and making sure they still qualify for benefits without […]
When I first heard the words Pitt Hopkins Syndrome (PTHS), my world changed forever. My daughter had been struggling with developmental delays, and after what felt like an endless journey of doctor visits, tests, and unanswered questions, we finally had a diagnosis. It was both a relief and a heartbreak—relief to finally have an answer, […]
One of the perks of moving to Orlando was having Disney close by, and we were excited about sharing that experience with our daughter, who has Pitt-Hopkins syndrome. I could always deal with other kids staring, but what I didn’t expect was how much harder it would be to deal with the adults. Once upon […]